Show Posts

This section allows you to view all posts made by this member. Note that you can only see posts made in areas you currently have access to.


Messages - frankw

Pages: 1 2 [3] 4 5
31
The Pub / Re: Babalu
« on: November 10, 2010, 04:23:42 PM »
Update 11/10/2010

Jeff had a pretty good day today.  They've been capping this trach tube and his oxygen levels have remained normal.  The speech therapist would like to keep it capped all day and take the cap off at night.  They want to give him every opportunity to talk.  His doctors need to approve that, but I would imagine that will happen in the next day or so.  This also means he's now able to actually smell things now. 

His wife brought in a Magnadoodle few days ago.  They've been writing words on it and Jeff is able to read and whisper/mouth the words back.  Today the gave him the pen and asked him to write his name on it, left handed by the way.  He wrote a J, a pretty sloppy E, they helped him with the first F and he wrote the second F on his own.  This is all great news. 

He didn't want to kick the ball today, just shook his head no.   So they had him catching and releasing the ball instead.  They roll it to him and he traps it with both hands, holds it and releases it wen they tell him to.  Thus far he's been able perform all of the therapy tasks they've asked him to.

He's still having trouble keeping his eyes open.  They've asked him a number of times and he confirms that his eyelids feel very heavy and he just can't seem to keep them open.  They're still trying to figure out why.

A lot of good progress, especially with his communication abilities.  Keep up the positive thoughts and prayers!
------------------------------------------
Donate to Jeff via PayPal

32
The Pub / Re: Babalu
« on: November 04, 2010, 03:57:23 PM »
Update: 11/4/2010

Jeff continues his slow but steady progress.  He's gained movement in his other foot now.  So that gives him movement in both hands and feet and movement in his left arm, wrist and elbow.   He's been mouthing words a lot lately and to get him one step closer to talking, they replaced his tracheotomy tube with a smaller one.  This one will allow him to at least partially breathe through his mouth and nose.  Once he get's used to it, they will be able to cap it and it will allow him to at least whisper.

They continue to slowly increase his central nervous system stimulant and slowly reduce his phenobarbital.  As a result of that, he seems to be even more alert.  They had him sitting on the side of his bed doing therapy for 45 minutes today.  His caregivers are very happy with his progress lately. 

He's still got a long road to recovery, but he's moving in the right direction and that's something we can all be thankful for.

Keep up your prayers and positive thoughts.  They seem to be working!

------------------------------------------
Donate to Jeff via PayPal

33
The Pub / Re: Babalu
« on: October 28, 2010, 04:24:41 PM »
Update: 10/28/2010

Jeff's making steady progress.  He's able to move his left hand, wrist and arm.  They had him sitting on the side of his bed today and had him swinging his left leg.  He also can move his left foot.  And he can now move his right hand.  Jeff still isn't talking and he won't really be able to until they can give him a smaller tracheotomy tube.  When they do that, they will cap the tube and he should be able to speak.

He's able to answer questions by mouthing the words.  He'll answer yes/no type questions as well as open ended questions, like "how are you feeling" or "how'd did you sleep last night" or they'll show him a toy and ask who's toy is this and he'll correctly answer which of his kids it belongs to.  

He still isn't opening his eyes as much as they were expecting, but he's much more alert.  They'll continue to slowly wean him off his phenobarbital, which is one of his anti-seizure meds.  And they'll continue to give him the central nervous system stimulant.

It appears to me, that his improvements are coming at a quicker pace.  So keep up the prayers and positive thoughts for even quicker progress.

------------------------------------------
Donate to Jeff via PayPal

34
The Pub / Re: Babalu
« on: October 23, 2010, 05:52:27 PM »
A quick Jeff update. Apparently when the nurse said good morning to him today he mouthed back the words good morning to her!   She also asked him how he slept and he mouthed OK.

------------------------------------------
Donate to Jeff via PayPal

35
The Pub / Re: Babalu
« on: October 21, 2010, 03:09:36 PM »
Update: 10/21/2010

Jeff had another pretty good couple days.  They still have him on a half a dose of the central nervous system stimulant and he appears to be alert more.  Still for only 20 minutes at a time, but he is waking much easier and will have multiple alert periods during the course of the day.  Yesterday during therapy Jeff was asked by his therapist to pick up one of his son's Matchbox cars.  With a scowl on his face, he refused to do so.  His sister got in his face and gave him a piece of her mind and demanded that he pick up the car.  He did and did it several more times when she asked him to.

Today he had another good session.  They sat him up on the side of his bed and had him picking up objects and dropping them when they asked him to.  Towards the end of the session his wife leaned over and kissed Jeff's forehead.  The therapist then told her to lean in and ask him for a kiss.  She was rewarded with two kisses, she was obviously thrilled.

The doctors and therapists are noticing increased muscle tone in his arm, wrist and neck and they are very happy with his progress lately.  Actually most of the staff on the floor are excited about his progress and are in and out giving Jeff their encouragement.

They will be upping the dose on his new meds within the next day or two.  With any luck this will wake him even more.

Please keep sending positive thoughts and prayers Jeff's way.

------------------------------------------
Donate to Jeff via PayPal

36
The Pub / Re: Babalu
« on: October 18, 2010, 04:38:04 PM »
Update: 10/18/2010

Jeff had a good morning today, was awake and alert for a while.  His speech therapist continues to work with him on his swallowing, which he's doing great at.   His facial expressions are coming back more, he will smile when asked to.  He can also stick out his tongue on command.  He will also grimace, furl his brow and raise his eyebrows.

He's gaining more and more movement in his left hand and the doctors expect to him to develop movement in his right hand soon.  After that they would expect him to develop movement in his legs and feet.  His doctors and therapist are happy with progress.

Today they gave him a half a dose of an analeptic (central nervous system stimulant) drug that it used to treat people with narcolepsy and other similar sleep problems.   He really didn't seem to react much to that dose.  They'll try a full dose on him tomorrow.

Every day he is having periods of alertness.  He's now opening his eyes more in reaction to the sounds around him,  opening them when he hears people's voices or hears people coming into the room.  His cousin was in the other day and he opened his eyes when he heard his voice and kept them open for awhile while he was visiting.   When he left he asked Jeff to give him a thumbs up.  Jeff opened his eyes and moved his thumb.

Please keep the prayers and positive thoughts flowing
------------------------------------

Donate to Jeff via PayPal

37
The Pub / Re: Babalu
« on: October 14, 2010, 09:15:43 AM »
Update 10/14/2010
 
Jeff had a fairly quiet long weekend.  Yesterday he was more alert.  At one point, he had his eyes open for about 20 minutes or so, looking around, making eye contact, tracking and looking at the TV.  The OT has been working with Jeff beyond the squeezing the hand thing.  They put a wash cloth in his hand and pull on it and Jeff will grip down on it and give some resistance when she tries to pull it away.  His wife also has been able to get him to open his mouth when they need to clean his mouth/teeth, etc.   And she's gotten him to respond to her by raising his eyebrows, when she asks him to.  Next week they are talking about bringing Jeff into the gym, getting him on a mat and really getting him moving.
 
His doctors have been consulting with the doctors at Spaulding Rehab and the doctor who treated the guy in RI who had EEE.  They've come up with some drugs they want to try on Jeff.  They are hopeful that the drugs will help to wake him up even further.  Apparently it is some combination of drugs that they give to accident victims.  He's currently on some antibiotics for a minor issue.  Once he's off those, they'll start the new treatment.     
 
Continued prayers and positive thoughts are greatly appreciated.

------------------------------------

Donate to Jeff via PayPal

Last chance to get in on the Masstoberfest Raffle for Jeff - Details - Tickets

38
The Pub / Re: Babalu
« on: October 07, 2010, 05:13:09 PM »
Update: 10/7/2010

I went up to visit Jeff today.  According to his wife and parents he had his best day yet.  He was awake for over a half hour today.  That's the longest period of time so far.  He was looking all around his room, tracking his parents, his wife and a couple friends that were visiting.  He even watched a little Sports Center.   Everyone talked to him and just enjoyed the moment, they didn't bother to call in the doctors or nurses.  Unfortunately by the time I showed up, the show was over and he was sleeping pretty heavily.  Apparently being awake like that really wears him out. 

A bit later on, Jeff's father was moving Jeff's feet and he opened his eyes again, we all started talking to him and his Mom told us to do it one at a time.  I was standing next to him on his left and I began talking to him, he looked right at me.  He also looked at some of the other people in the room when they talked to him.  This only lasted a few minutes, but this time you could tell he was really looking at you,  that there was some real comprehension going on.  A couple weeks ago I visited him, he opened his eyes briefly but it was just a blank stare.   

So that's two days in a row, where he was awake for an extended period.   Maybe it's really happening now!

Keep up the thoughts and prayers!

Frank
 
------------------------------------------
Donate to Jeff via PayPal

39
The Pub / Re: Babalu
« on: October 06, 2010, 10:47:31 AM »
Quick Update: 10/6/2010
 
Sorry it took so long for this update, there hadn't been anything new to report.  Jeff had a good morning today.  Seems that he had his eyes open this morning for a while and was tracking the Occupational Therapist all around the room.  He also moved his hand 10 out of 10 times when asked to do so by the OT. 
 
I'm heading up to visit him tomorrow after work, I will give another update then.
 
Please keep up the positive thoughts and prayers. 
 
Frank
 

------------------------------------------
Donate to Jeff via PayPal

40
The Pub / Re: Babalu
« on: September 30, 2010, 02:56:24 PM »
Update: 9/30/2010

Jeff had a great day today!  They had him sitting up in a chair.  It's a big mechanical chair that lays flat so they can transfer him easily from his bed.  They strap him in and sit him up.  He spent a good deal of time in the chair today. 

He had his eyes open a lot today and seemed more alert.  Best of all, the nurse watched Jeff track his mother as she walked across the room.  That's big.  Later,  Jeff's wife saw him move his hand and she pointed it out to the occupational therapist.  The OT got in Jeff's face and asked him to move his hand again and he did.  In fact, he moved it 5 out of 5 times she asked him to.

Keep the prayers an thoughts coming, he's getting closer.

------------------------------------------
Donate to Jeff via PayPal

41
The Pub / Re: Babalu
« on: September 29, 2010, 04:04:29 PM »
Update: 9/29/2010

Jeff's progress is going slowly.  He continues to open his eyes on his own but is still not tracking.  He's responding to his wife and family by opening his eyes and sometimes looking in their direction.  His wife says that today he was squeezing her hand throughout the day.   She specifically asked him to squeeze her hand, to show her he loves her and he did.  The nurse actually witnessed this little interaction and acknowledged that she saw him squeeze her hand.  Yesterday he did have a fever and his white blood cell count was up, so they put him on antibiotics to treat any infection.  His temp was back down today. 

Keep the faith, keep the positive thoughts and prayers coming.  And let's hope that his progress starts to pick up it's pace soon.

------------------------------------------
Donate to Jeff via PayPal

42
The Pub / Re: Babalu
« on: September 25, 2010, 05:16:30 PM »
Update: 9/25/2010

Jeff has been moved to a rehab facility on the North Shore.  He will remain there until he is awake and able to follow commands, at which point he'll likely be moved to full Rehab facility in Boston for intensive rehab. 

Jeff had a sleepy morning and a pretty responsive afternoon.  He opened his eyes a lot today, sometimes on his own and sometimes in response to his wife and her sister talking to him and asking him questions.  He opened his eyes to a a question about whether he wanted to see his kids.  He opened his eyes to when asked if he wanted a beer, since Sam's Oktoberfest is out.  He also opened his eyes to a conversation about the tuna bite being on.   He's still not tracking objects when his eyes are open, but he is looking in the direction of familiar voices.  His overall healh is good otherwise. We'll find out soon, what they have planned for Jeff while he's at this facility.

As always, keep Jeff and his family in your thoughts and prayers.

------------------------------------------
Donate to Jeff via PayPal

43
The Pub / Re: Babalu
« on: September 22, 2010, 01:12:39 PM »
Update: 9/22/2010

Not a whole lot to report.  More opening his eyes on his own, more looking at his wife, more yawning and now a bit of what appears to be stretching his legs.  They've been adjusting his bed so that he's in a semi-sitting position for periods of time.  No signs of seizure lately, cultures they've taken to check for infection have all come back negative, his white blood cell count is good and his blood sugar is normal  The steroids could have caused some problems with this blood sugar, but it appears they didn't.   He's now off the steroids.

There's still been some discussion with the medical staff, the LTAC, the rehab and the insurance folks about where and when they'll be moving him.  That should hopefully be cleared up shortly.

That's it for now.

Please keep praying and keep the positive thoughts and energy coming.

------------------------------------------
Donate to Jeff via PayPal

44
The Pub / Re: Babalu
« on: September 20, 2010, 05:04:10 PM »
Update: 9/20/2010

Jeff had another pretty good day.  He opened his eyes and was blinking on his own a number of times since the last update, but not as long as he did yesterday.  He's been reacting to his wife's voice and looking in her direction when she talks to him when his eyes are open.  He doesn't seem to care much for the doctors' or the nurses' voices, just his wife's.   One time he appeared to be looking all around his room, like he was trying to figure out where the hell he was.  While doing that his heart rate and breathing increased quite a bit, as if he figured it out and was nervous about it.  His wife called his name and he looked in her direction and seemed to calm down and then close his eyes again.  He also seemed to be moving around in his bed at least once.  

Not related to the previous incident, but in general, his heart rate is back down to normal.  It's been elevated the whole time, which doctors attributed to his brain swelling.  So maybe the steroids are actually eliminating the swelling.  He'll only be on the steroids for about another two days. So let's hope they do their job and have lasting benefits.

The staff said they were pleased with his improvements over the last couple days and now they're talking about moving him straight to rehab, and not the LTAC.  This is good news or could be bad news.  Insurance will only allow him 60 days of rehab.  So Jeff's family is nervous about sending him so soon,  in case he's not ready for it.  They don't want to waste any days, since nobody knows how long rehab will take.

So once again my friends, I'm asking for another blast of positive energy and prayers.  Let's help Jeff to improve exponentially and be able to take advantage of the early rehab.   Maybe with our help and the skill of his medical staff he won't come close to needing 60 days for rehab.

For those of you who have generously donated to the fund that Jeff's family has set up, I thank you, Jeff's family thanks you and his wife thanks you form the bottom of their hearts.  For those of you who haven't donated, for whatever reason, please reconsider.  The medical bills are mounting, his wife's out of work and Jeff will soon be only collecting a percentage of his salary from disability insurance.

Take care, thank you and keep praying.

------------------------------------------
Donate to Jeff via PayPal

45
The Pub / Re: Babalu
« on: September 19, 2010, 02:18:54 PM »
This is fantastic! Does it mean he won't go into longterm acute care but into rehab since he is waking up?

Don't know yet.


Pages: 1 2 [3] 4 5